I’m pretty candid about my feelings here on my blog, what I’m up to, my books and more. And if you have read any of my earlier posts or my “About Me” page, you know that I have a rare chronic illness that can be challenging at times. Well it seems that I’m in one of those “times”.
The illness that has decided to hitch a ride with me is Mastocytosis. It has a chronic aspect to it but there can be times when it cycles and your symptoms seem to be gone. Like you’ve been cured. For the last seven months, it seemed like my “not so good” symptoms (trying not to use very negative language) had gotten so much better that my doctors encouraged me to try some new things – food, places, events, more sunshine – well, just about anything that had been curtailed in my life for a LOOONNNGGG TIME!
I have to admit I was worried to step out into these new waters because I was out of my comfort zone but I jumped in with both feet and started trying things I hadn’t done or had in years. New foods, staying out in the sun longer than normal, going to concerts (loud noise and flashing lights), department stores with fragrance departments and much more. I was so excited when I would do something new and my symptoms stayed neutral or maybe just a slight increase but nothing that sent me to the emergency room!
But everything started changing in early June. I could tell some symptoms were beginning to ramp up again but I didn’t pay attention. I just figured I would keep pushing through and I did. But guess what? Our bodies will push back. And mine did.
So it seems I’m starting from scratch with a treatment plan again. It’s not really how it was when I first got my diagnosis but I have to admit, I have really LOVED – did I say “love” – the chocolate I was eating for the first time in years. Wow, how I had missed that! Plus, going to three concerts – it was so much fun because when I was younger, we went to concerts all the time. I have to curtail some things but I’m okay with that. If it is healing, I’m for it. I want to feel good and I’m a huge believer in natural healing as much as possible. Thank goodness I have a group of doctors that support me as long as I get the necessary medical treatment if things aren’t getting better.
What does this have to do with change? I guess because these last few months had shown me things I had been missing. I had completely isolated myself because of the illness. But now I know that maybe I can’t do everything full force like I have been doing but I can do things in moderation. Instead of a couple of hours at the beach in the sun, maybe an hour or so, spending some time under the pier to lessen the sun exposure. Or even going in the evening! With my food, I’ll have to give up chocolate and a lot more for a while till things settle down but then add some foods back gradually and eat them once in a while instead of everyday. It’s that saying: Everything in moderation.
At first I was upset that things had to change. To go back to the way they were before I had the go ahead to try the things that I had to give up due to the illness. But I see that the changes I’m making now aren’t the same as before because I’m different. I choose to see that what I’ve been through (and going through) was a learning lesson and now I can make positive changes. And maybe, just maybe, there is someone out there facing a big change they aren’t looking forward to and can take some comfort from my words. Choosing to see the positive can make this new “normal” better than ever.
Sending you some positive vibes!
Change Can Be Good